If you’ve ever wanted to try making your own fermented foods but thought it all looked too complicated then I hope I’m about to change your mind! In this post I’m sharing a very simple method for creating tasty, probiotic-rich, fermented vegetables which you can […]
Hello and welcome!
My name is Anne-Marie and I’ve created this blog to share some of the positive discoveries I’ve made along the way to living well with Ankylosing Spondylitis.
Let me be honest from the outset – I’m not living a perfect, pain free life and I do still have my share of flare ups, sleepless nights and bad days. Thankfully though, these are now becoming the exception rather than the norm, and for the most part I am enjoying my life and feeling well. And if I look across the past few years I can see a steady improvement in my levels of pain, a decrease in my reliance on meds, and an increased feeling that I am calling the shots as far as my health is concerned. There is no doubt I am slowly but surely heading in the right direction.
If you (or someone you love) has AS then I am excited you’ve found me! You are the reason I have decided to share relevant information I come across, along with my personal experiences. I hope that this might provide hope and some practical solutions to other people who are feeling alone or otherwise struggling with this disease .
There is a distinct lack of optimism around being told we have an incurable, chronic autoimmune disease, and sadly most professional advice is limited to “keep moving, take these drugs, come back and see us when they stop working”. This is exactly what I was told following my own diagnosis 4 years ago, and they were certainly not the words of encouragement I wanted to hear. There was a basic assumption that a) this was totally out of my control b) I was simply going to get worse over time and c) I was embarking on a lifetime course of stronger (and scarier) medication.
Thankfully, over time (and the internet, for which I am forever grateful!) I have found there is much more that can be done. There are also many others like me who are forging different paths and, through all different ways, thriving in spite of their AS. I have come across many different ideas and tactics to support my health and diminish the impact of AS on my life and I really look forward to taking you through some of these in my blog posts.
Most significant of all, I even dare to believe these days that switching the genes responsible for AS off and entering a state of remission IS possible – in fact, I know people who are living happily in this state already! I’m certainly not there yet, but I am realistically optimistic that I will achieve this goal over the years to come and will once again enjoy the fulfilling and healthy life I was meant to have.
My quest is to learn everything I can about AS, autoimmunity, gut health, diet, natural therapies, medication and mindset. Through investigation, trial and error I am continually learning what works for my body and what doesn’t, and I already feel I understand my individual health better now than ever before.
Just a few disclaimers: It’s really important to remember that what works for me may not work for you, and vice versa. We are all unique (in spite of sharing a diagnosis) and its up to each of us to come up with a customised plan for our own health.
You will no doubt also have different ideas and goals than me in terms of the life and health you want, so bear this in mind when reading my posts. For example, my goal is to be as free of medication as possible because I know this is when I feel my best. Your goal might be to find medication that works for you and maximise its effectiveness through supporting your health in other ways. There is no right or wrong way to do this and I hope that regardless of your definition of living well you will find helpful information and inspiration in what I share.
I also need to be clear that I am someone with AS, not a medical or natural health professional and will always endeavour to share the source of any information I share. Before embarking on any new diet, treatment or health strategy please talk to your relevant health expert and be sure this is the right step for you to take.
Please do comment or contact me, I’d love to receive your feedback and will endeavour to personally respond to all messages.
I would also love for you to become a subscriber, join my Facebook page and come along with me in my quest to live well with AS.